Friday, June 6, 2025

My journey with Alzheimer’s : Birthday Month


It’s been some time since I’ve posted / written on my weblog and I believed at present is likely to be a very good day. I’m having some points with my medicine – my neurologist gave me a better dose of Aricept and my abdomen doesn’t prefer it very a lot! I haven’t had loads of vitality and there are days that every one I need to eat / drink is a smoothie and really bland meals. I am hoping to attach along with her quickly to see what’s subsequent. This can’t proceed…..

Fortunately final week my abdomen cooperated and I used to be in a position to have a pleasant dinner with Bob on my birthday at The Slanted Door. Earlier that day I had lunch with Kristen and on the weekend we celebrated with Ryan & Kristen at Piatti. It was positively a fantastic birthday week 🎈 I’d additionally prefer to ship an enormous thanks to all of my associates who despatched me texts, emails, playing cards and FaceBook notes! Over 200 of my Intel buddies & household/associates  reached out and that meant quite a bit to me!!

Bob has been swamped and accepted a brand new job because the CEO of the Walnut Creek Chamber of Commerce.  He is been so busy with that and together with his interim job on the SVO Chamber that some days I barely see him! I am positive it is going to present down when he can focus 100% on Walnut Creek and hopefully he can take some lunch breaks with me.

My quick time period reminiscence loss is annoying however I’m turning it right into a optimistic! I can learn the identical books I’ve learn earlier than and I don’t bear in mind what occurs! I can watch Gray’s Anatomy again and again – six time to be precise and nonetheless take pleasure in it!! Among the episodes I don’t bear in mind what occurs, however I’ll always remember that Derek died. I’ve  watched it so many instances and that episode nonetheless brings me to tears. Do I do know what I had for dinner yesterday? In all probability not – however does that matter ?? The actual points are the complications and fixed ringing in my ears, and my lack of CRS (cannot bear in mind sh*t)! I am hoping it will change quickly however both approach I’ll hold going!

Bob & Kristen and the remainder of my family and friends are affected person with me. I even have a trick – once I’m speaking to individuals I at all times say “we would have talked about this already however .(fill within the clean)”. I do know issues will worsen earlier than they get higher however that’s okay. All of us knew that is what occurs when you’ve Alzheimer’s illness. I’m grateful every single day for what I can do and check out to not deal with the unfavourable points I am coping with.

I’ve made changes and check out to not schedule an excessive amount of on my calendar. Any time I’ve a telephone name or ZOOM I’ve to put down afterwards, and typically I’ve to take some Tylenol to cease my head from pounding.  I can nonetheless drive however which may be coming to an finish. I’ve to take my annual DMV written check, and I’ve to take a driving check behind the wheel this 12 months too! I am unsure how that is going to go and I am fairly positive I will not go the written check as a result of I will not be capable of bear in mind the proper solutions. Truthfully I do not care both approach! I’d be completely happy to rent a care companion/buddy to be my driver and to assist me out. If I discover the best individual that might be actually enjoyable😊

So sufficient of the unhappiness and dangerous stuff that is going one. Let’s discuss the great things💜 I’ve had each of my vaccines however will not be out and about till Could and that is okay. I’ve a couple of lunch dates on the calendar already and am trying ahead to seeing a few of my associates. I’ve carried out loads of knitting and completed one other lap blanket. I will probably be utilizing that as a part of my fundraising for our Walk2EndAlz! I actually need to be one of many high fundraisers once more so search for my posts on FaceBook quickly. Since my final weblog we additionally celebrated my daughters birthday in Sausalito and that was enjoyable. Staying at their home and spending time with Celly was nice too. 

I had one other infusion — #24 on the finish of the month and shared my fancy Kate Spade footwear. The following one is tomorrow and this time Kristen will probably be with me! I am very enthusiastic about that. It has been a very long time since she’s been in a position to take me to UCSF. I am going dwelling along with her too and can spend some high quality time at her home. 

I am nonetheless take heed to Audible books virtually every single day and conserving lively and engaged. These previous few weeks I’ve learn 5 books on Audible and am rereading ”One thing Within the Water” now. Listening is nice for me even when I’ve to take notes on the story line and characters. It is calming and I am  fairly positive it is good for my mind and my angle.

I am nonetheless strolling on the Iron Horse Path, doing my yoga, meditation and prayers, however I am additionally spending time with Rusty on the sofa and coping with my complications. I’ve determined down time is important. 

I hope you’re all doing effectively and I hope to attach with a few of you in individual later this 12 months – or possibly subsequent 12 months! We’ll simply take it sooner or later at a time.

Thanks as at all times on your ideas, prayers and notes/emails/Fb posts! You all hold me smiling and lifted up🙏💓

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