| Infusion #25 |
Blissful Monday to all of you! I hope you are having a fantastic day and having fun with your family and friends. It positive is sweet to have the ability to get exterior and spend time along with these we love💓
This month was fairly loopy! I discussed final month that the Aricept was actually bothering me and inflicting loads of points, complications and extra. I made a decision to return to the decrease dose I had been taking since 2016 and what a life saver that was! I am nonetheless coping with ringing in my ears, complications and exhaustion however no less than my spirits are excessive and most days I am in a fairly good temper and might keep lively now.
I’ve had two infusions since my final weblog – one in April and my last infusion for the Eli Lilly Trial was final week – Could seventeenth. I nonetheless have cognitive testing, an MRI and a PET scan in June. With the PET they may put radioactive dye in my veins after which take photos of my mind. I do not know when/if they’re going to inform me the result of our Lilly trial however I am extraordinarily grateful for UCSF and all of their workers. We want extra folks to become involved with medical trials – so when you’re up for it please search for alz.org/trialmatch! They’ve many varieties of trials and people of you with none cognitive points will help by signing up. If in case you have any questions on it please attain out through electronic mail, textual content or on Fb. I am additionally hoping and praying that there can be one other trial for me to take part in later this yr🙏
So the large factor that occurred recently- and I could also be repeating myself from final month – however my drivers license is suspended! My neurologist stuffed out the paperwork final month and just some days later a letter from the DMV got here within the mail. The paperwork stated ‘NO MORE DRIVING’.
I’ve a possibility to a listening to and I’ve chosen that path. It is a cellphone name so it must be fairly simple to navigate. My ask is for them to permit me to drive inside a 5 to 10 mile radios of our home. I do know it is a lengthy shot however I figured I might give it a strive. At this second I’m not allowed to drive and have been taking UBER and asking my buddies for rides. It has been nearly of full month and I’ve adjusted to spending extra time at house. I do miss my automotive and the liberty however truthfully I am grateful for all of the driving time I’ve had. Many people with this analysis get their license taken away instantly.
Kristen and I had a enjoyable mid week getaway in early Could on the Ritz Carlton in Half Moon Bay. It was a a lot wanted break and the meals on the lodge was wonderful Our room had an excellent view of the pacific ocean and it was simply what we would have liked. We walked on the seaside and went procuring and within the night we watched some high quality ‘chick flicks’. I positively advocate getting away now that issues have opened up. I feel it was good for Bob to have some downtime too. He is working very exhausting together with his new job because the CEO of the Walnut Creek Chamber and I am needing slightly extra assist so taking a break from me is crucial to his well being.
For Mom’s Day I used my mother’s Dresden china and sterling silverware and Bob cooked up a tremendous feast! It was good to have fun the day in model.
Afterwards we went to a film! Fried Inexperienced Tomatoes. I forgot how unhappy it was however it positive felt good to take a seat within the theatre – there have been 5 folks watching the present – together with us. They’ve some severe protocols whenever you’re shopping for the tickets however we made it work for us and we received to take a seat subsequent to one another. We have all been vaccinated and everybody we have been round has been too. We nonetheless put on our masks however fortunately not as usually as we used to.
I had a good time with a few of my buddies this month too, and I went to Santa Cruz for the day with Buck & Karen! I’ve identified them for nearly 30 years and we all the time get pleasure from every others firm. The ocean is my favourite and I used to be capable of take them down ‘reminiscence lane’ and confirmed them the home I lived once I was in third & 4th grade.
Bob and I had a scrumptious meal with Tim & Elaine earlier this month too. We sat exterior and talked and talked. It was pretty and I am hoping to do extra of that with a few of our different close by buddies.
Bob and I have been additionally capable of have dinner with Kristen final week in downtown Danville. I needed to have cataracts surgical procedure on Thursday and Kristen was doing all of the driving and staying with me in the course of the process. It was/is wonderful how significantly better I can see regardless that its nonetheless therapeutic.
Later this week they’re doing the opposite eye! I’ve to put on sun shades on a regular basis in the home AND exterior due to the brightness, however its positively value it. I am positive issues will relax quickly. I’ve struggled with the instructions with all the attention drops however I feel I’ve it discovered now. I strive to not get annoyed and I’ve all of the instructions written down. My bestie Sylvia can be right here to assist and I can’t wait to hang around together with her😊
Rusty continues to be the perfect caregiver kitty EVER and I am unable to think about not having him by my aspect day and night time. Our fur infants positive do carry us pleasure 😻
A couple of weeks in the past I believed I would not have the ability to write one other weblog however now that my drugs is again on monitor I feel I’ve a couple of extra EXCELLENT years forward of me💜
I began seeing a therapist and he or she gave me some good recommendation final week. She desires me to maintain running a blog – even when its just a few sentences. She desires me to ‘construct my tribe’ and he or she desires me to have a mantra that I can say/chant when issues are buzzing round and inflicting ache in my mind.
That each one sounds good to me! I would like downtime, I have to give up freaking out about not being the highest Alzheimer’s Assoc fundraiser and I have to relaxation and calm down and keep away from complications if potential.
Thanks all to your help and donations and friendship. I do know a few of you might be alone too and never capable of drive so please attain out to me so we are able to keep linked through FaceTime, Zoom or on the cellphone. I am comfortable to be a part of your ‘tribe’ when you want help.
Love, peace and blessings my buddies🙌
