Pleased Monday! It is a new month and a brand new day. Every single day is valuable for all of us, however particularly for these of us dwelling with Alzheimer’s and different dementia. I really have discovered to cherish each day and to hearken to my physique. Some days I have to relaxation. Some days, like at present, I’m full of power and simply got here again from a beautiful stroll round Danville and the Iron Horse Path. The solar was out and I used to be listening to my guide and I could not have been happier.
January turned out to be a busy month for us. Bob has been busy working and continues to do many of the buying and creates scrumptious dinner gadgets for us. We additionally reap the benefits of Door Sprint and different take out choices after we’re within the temper. It is good to combine it up a bit and his job takes numerous of him. He is placing his coronary heart and soul into his interim job because the CEO of the Silicon Valley Group. As lots of you already know he was the previous president and CEO of San Francisco Chamber of Start. I do know he’ll make a distinction for them!
It was a busy month, I truly had two infusions in January! That does not occur fairly often however this month I had one on Jan fifth after which once more on Jan twenty seventh. The primary infusion included all of the cognitive testing and I got here residence worn out. Infusion #22 was fairly straightforward! They initially discovered my vein in my left arm however then one thing occurred and the injection web site began swelling! So in fact they went into my proper vein. Fortunately more often than not it would not damage when they’re looking for my veins. The nurses are superb and I at all times look ahead to my time at UCSF. We introduced them some See’s sweet this time, and final month my bestie Debbie made them some toffee😀
I’ve spent numerous my free time knitting too and am within the course of of creating my first hat! It is positively not excellent however I am positive the following one shall be higher. I additionally made a small cowl scarf for my pal Dani who’s a brilliant star Alzheimer’s fundraiser and a beautiful particular person! My subsequent undertaking shall be one other Alice’s Embrace blanket. I’ll ship some photos on-line once I’m completed! Knitting has turned out to be one thing I actually look ahead to. The mix of knitting and listening to books actually works for me.
This month’s guide was ‘The Dutch Home’ by Ann Patchett. It was WONDERFUL. I’ll most likely learn it once more in a number of months. I’d like to know what a few of your favourite books are too! Please ship me a word on Fb or textual content me if you happen to’re up for it.
My shoulder continues to trigger ache and fortunately my chiropractor has helped fairly a bit. I’ve extra vary of movement and I am hoping some day for it to heal.
Buddies imply the world to me! Connection is so necessary, particularly throughout these robust instances. I am not in a position to drive to my daughters home however I used to be in a position to spend a number of days along with her thanks to 2 of my expensive associates Buck & Karen! They’d supplied to drive me wherever I wished to go a number of months in the past however I hadn’t taken them up on their provide. It was excellent timing and I spent two days there, after which they got here to get me and took me residence. I can not let you know how grateful I’m for his or her kindness and friendship.
One of many highlights of the month was a gathering I had, together with others who’re dwelling with AD, with the FDA. It was a closed session, very personal affair. There have been a number of of us who shared our journey and the worry and unhappiness we have now about our future. It was extraordinarily emotional for all of us. Many people cried and in the course of the Zoom name you may see that lots of the members from the FDA had been moved to tears too. After our assembly the FDA determined to increase the evaluate interval for Aducanumab, the primary new therapy for Alzheimer’s in many years and the primary that seems to gradual development of AD. These conferences are crucial however they positively wipe me out.
I additionally wrote a letter to the Editor of the East Bay Occasions and that was revealed at present. It was positively a busy busy month for me. Bob and I ended the month with a a lot wanted lunch date at Crumbs in Danville. We are actually in a position to have out of doors eating and it was the primary time we would been out collectively in a very long time. Our daughter Kristen joined us and it was fabulous. Good climate, superb meals and positively good firm.
In order that was my month – past busy for some purpose however that is okay! I wrestle every day with remembering conversations and occasions. I’ve my household and my associates to assist me. I am positive it is annoying at instances nevertheless it’s all fairly regular for somebody dwelling with this illness.
Rusty remains to be the very best kitty ever and follows me round the home. He sleeps with me, snuggles with me once I’m studying and positively is an excellent caregiver kitty.
I hope you all had an ideal month. We’re trying ahead to 2021, to the vaccine, to friendships and social occasions and plenty of hugging – when the time is true. All of us want connection so let’s hope we will get again to regular quickly.
Thanks to your assist, friendship, emails, textual content and great cellphone calls! You all carry me up and maintain me smiling. God bless you🙏
