This month has flown by and I am combating the truth that Halloween is tomorrow! It is loopy how the times and weeks all mesh collectively. I am questioning if that is a brand new symptom of my Alzheimer’s or if everyone seems to be in a fog today. I truthfully by no means know what day it’s however I can usually keep in mind what month we’re in. However who cares? Do I have to know the date and the day of the week? Does it matter to me or is it OK for me to go about my enterprise and my actions with out being conscious of this stuff?
I do know my illness is progressing however I additionally know that I’m doing fairly darn good! I am completely happy, I am lively and I’ve numerous family and friends which can be staying related with me and ensuring I am okay. Thanks for that! A couple of months in the past I used to be feeling unhappy and down and alone however you all helped me get out of my ‘funk’ and issues are a lot better now💜
I have been protecting busy knitting and I’ve executed a ton of strolling and listened to a number of books this month on Audible. I actually loved REBECCA by Daphne du Maurier and browse one other Kristin Hannah e-book – THE GREAT ALONE! I’d advocate each of them.
We had a number of days of unhealthy climate and smoky sky’s however that is gone now. I had my 18th Eli Lilly scientific trial infusion and fortunately that went effectively with none evacuations😀 I’m grateful for trials and really hope we are able to discover a approach to decelerate this illness quickly!
There is a public listening to quickly concerning Biogen, one of many potential medication the FDA could approve. I will likely be dialing into the listening to and sharing my opinion on that matter and am hopeful that we are able to begin a Part 4 open label trial some day. These of us dwelling with this illness want hope, and so do our households🙏
On the twenty fourth we walked within the ‘digital’ East Bay #Walk2EndAlz. It was so bizarre to stroll alone with our household and one among my greatest girlfriends. We could not stroll with our crew as a result of a lot of them dwell out of city and nobody wished to take the chance of COVID. We wore our masks, carried our flags and had our purple shirts on. It was enjoyable however positively not the large celebration we’re all use to. I used to be unhappy initially however as time went on I knew that there can be no approach for us to rejoice the way in which now we have the previous 4 years.
We did elevate some huge cash and I need to thank all of you who’re studying my weblog for that! All my Intel buddies, my household, my neighbors and my buddies on the Nationwide Alzheimer’s Assoc BOD! All of you! You all got here by, have been VERY beneficiant and we have raised over $35,000 thus far💰 THANK YOU!!
Wednesday of this week Bob and I additionally have been a part of Maria Shriver’s WAM (Girls’s Alzheimer’s Motion) summit. It was nice to attach with different households dwelling with this illness and to attach with Deborah Roberts, Al Roker’s spouse! I used to be somewhat nervous as a result of it was streaming dwell however I shared my story and pulled it off with none tears. Thanks to all of you who listened/watched and in your help. I’m grateful I can nonetheless be productive and use my voice throughout these powerful occasions.
So I assume that was my month! I began my finish of life plans and stuffed out The 5 Needs Superior Directive doc that may make it simpler for Bob and my household to make choices. Our pricey buddy and hospice nurse came to visit and helped us by the method and gave us some good recommendation on learn how to proceed. She’s going to assist with discovering me a ‘buddy’ too! I will not have the ability to drive for much longer and I at present cannot drive at evening so I am excited to have somebody to hang around with! We are able to go on highway journeys collectively and she will be able to drive me to Kristen & Ryan’s home any time I need! How enjoyable is that?? Oh, and two of my different greatest buddies provided to drive me wherever I wished so we could be occurring some quick highway journeys to Napa, Sonoma or someplace close to the ocean. Only a day journey to get out of the home and really feel somebody regular. And do not be alarmed – we will likely be carrying our masks the complete time and taking meals with us😊
In order that’s my month-to-month replace. I am doing okay. Quick time period reminiscence is a multitude however most days I am simply tremendous. I am completely happy, I’ve bought my Rusty kitty to snuggle with throughout my nap time and I’ve bought a tremendous husband, a unbelievable daughter and tons of family and friends to maintain me smiling an entertained.
Have a contented and secure Halloween everybody! Thanks for all of your calls, texts, donations, emails, FaceTime and for checking in on me. You all make me smile! God bless you all🙏
